Thursday 27 November 2014

Home at last

After six very long and grueling weeks, Elyse was finally discharged from CHEO yesterday.  The last few days have been a flurry of picking up equipment, filling prescriptions, and coordinating a variety of follow up appointments over the next few weeks, but we finally made it!

so long, 4 East!

She is still using an NG tube to finish feeds, so we needed to rent a feeding pump to use at home, as well as learn to insert the NG tube ourselves.  We saw the pediatrician today, and came up with a plan to start waiting a little longer before topping her up through the feeding tube, in hopes that she will start to bottle or breastfeed more efficiently herself.  I feel like we are getting close, and hopefully being back in her home environment will help encourage her to return to old habits.  She will also continue to receive a Pulmicort (steroid) mask twice daily for another week, to treat the intubation granuloma.  Fortunately, we were able to borrow a nebulizer from the hospital to finish those treatments at home. 

aw Mom, do I have to?!

Despite having a few more challenges to work through, CHEO has been really good at supporting us through the transition home, and we are so happy to finally all be under the same roof again!  Emmett was especially pleased that they could finally wear their Halloween costumes together...better late than never!

finally reunited with his favourite dalmation

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